Back to Top Sailing enthusiast tests patient-centred approach to Parkinson’s care - The Ottawa Hospital Website scanner for suspicious and malicious URLs


Sailing enthusiast tests patient-centred approach to Parkinson’s care

Peter Juryn in sailboat waving

Sailing enthusiast Peter Juryn joined a pilot study that put him in charge of managing his Parkinson’s disease. An expert nurse helped him set his own care priorities and referred him to health-care professionals who specialize in his care needs.

Close-up of Peter Juryn in sailboat

Sailing is a life-long love affair for Peter Juryn that began when was nine years old. He now sails out of the Nepean Sailing Club, where he also helps out with the boats and hangs out with his friends.

Unfortunately, the medication he takes for Parkinson’s disease was keeping him awake for hours during the night, making it harder to do the things he loves.

During an appointment, Dr. Tiago Mestre and nurse Diane Côté asked if he would like to take part in a study looking at a new way of delivering Parkinson’s care.

“I said ‘Sure, I’ll help. What can I do?’” said Juryn. “I’d like to help the system work better. If it can help me as well, then that’s great too.”

Juryn was paired with Côté, a specialized Parkinson’s nurse, who helped him identify his three care priorities: sleep, speech and exercise.

“I’m more in the driver’s seat,” said Juryn, who has lived with Parkinson’s disease since 2001. “I’m kind of building more of a team around me, based on these priorities.”

Juryn is currently treated with deep brain stimulation for his Parkinson’s, which reduced his medication and improved his sleep. But simple tips like moving his desk and computer out of his bedroom also made a difference.

“I built a sleep sanctuary of sorts, free from all blue screens,” said Juryn.

Close-up of Peter Jurny in sailboat

Côté also lined up a referral to a sleep clinic and to a speech therapist, all without Juryn having to see a neurologist. Thanks to a care network created by the researchers, she was able to direct him to professionals with knowledge of Parkinson’s disease. Peter has joined a specialized speech therapy program for people with Parkinson’s, and his voice and swallowing have already improved. He also joined a gym where he exercises three to four times a week.

“There’s a lot of demand for Parkinson’s neurologists, and patients often wait months between appointments,” said Côté. “By referring patients to specialized caregivers in the community, we can improve their quality of life with little cost to the system.”

Dr. Mestre received a $197,000 New Investigator Award to test this new model of care, called the Integrated Parkinson’s Care Network, which was developed in collaboration with Dr. David Grimes. The pilot study at The Ottawa Hospital has recruited almost all the 100 patients it needs after only four months. If it is successful, the model may be introduced to other sites across Ontario and Canada.

“I’m excited about this project because it has the potential to make a real difference for our patients, and the results are immediate,” said Dr. Mestre, a Parkinson’s neurologist at The Ottawa Hospital and an assistant professor at the University of Ottawa Brain and Mind Research Institute. “We believe that this patient-centred model can improve quality of life for the 100,000 Canadians living with Parkinson’s disease.”

Juryn has been very satisfied with the care he’s received.

“All the staff are really helpful, and they obviously care,” said Juryn.

“I am very proud of Peter for his accomplishments and the things he is doing to improve his quality of life since entering the study,” said Côté.

This research is also supported by generous donations to The Ottawa Hospital and the University of Ottawa Brain and Mind Research Institute.


Comment on this post

Your email address will not be published. Required fields are marked *


You might also like…

Patient gifts a piece of home to Indigenous Cancer Program

Inuit patients can now see and hold a piece of their traditional territory in the Windòcàge Room at the General Campus, thanks to an interactive gift donated to The Ottawa Hospital by a cancer patient.

Second Chance: Don’s song for the people who saved his life

Making music has always been a big part of Don’s life, so when the staff and doctors at The Ottawa Hospital saved him from the brink of death, he could think of no better way to thank them.

A land acknowledgement that honours the land and the medicines it provides

Visitors to The Ottawa Hospital are now greeted by a prominent land acknowledgement, which has been installed by the main entrances at each of our three main campuses. It is paired with artwork by Simon Brascoupé and his daughter, Mairi Brascoupé, both from Kitigan Zibi Anishinabeg.

The comfort of home: Home Dialysis Program empowers patients to live more independent lives

For people living with kidney failure, the most ideal form of dialysis treatment is done in the place where they are most comfortable—their home. Five years ago, we transformed our Home Dialysis Program, enhancing quality of life for our patients, welcoming more patients, and turning it into a model for dialysis programs across the province.

After a life-altering bike crash, this group of volunteers proves that friendship and community are powerful medicine

In September 2021, a visiting professor woke up in our ICU completely alone. He admits that he wouldn’t have made it through the first few months without support. But he didn’t have to, thanks in large part to a group of caring volunteers who came to his side during this difficult time—and have been there ever since.

“My craft is to make people happy”

As a shuttle bus driver at The Ottawa Hospital, Bill Nauffts knows that staying on schedule could literally be the difference between life and death—but it’s what Bill does during his break that brings him and others the greatest joy.

This website gives you common facts, advice and tips. Some of it may not apply to you. Please talk to your doctor, nurse or other health-care team member to see if this information will work for you. They can also answer your questions and concerns.