{"id":51275,"date":"2020-01-22T12:16:35","date_gmt":"2020-01-22T17:16:35","guid":{"rendered":"https:\/\/www.ottawahospital.on.ca\/?p=51275"},"modified":"2024-01-03T14:08:33","modified_gmt":"2024-01-03T19:08:33","slug":"what-medical-assistance-in-dying-looks-like-for-the-ottawa-hospital","status":"publish","type":"post","link":"https:\/\/www.ottawahospital.on.ca\/en\/healthy-tomorrows\/what-medical-assistance-in-dying-looks-like-for-the-ottawa-hospital\/","title":{"rendered":"What Medical Assistance in Dying looks like for The Ottawa Hospital"},"content":{"rendered":"\n<p class=\"has-text-align-center\"><em>Medical Assistance in Dying has been legal in Canada since 2016. As the largest hospital in Eastern Ontario, The Ottawa Hospital developed a comprehensive program to provide MAiD to patients in the region. <\/em> <\/p>\n\n\n\n<p>When you have been told that you have a limited time left to live, a great deal can suddenly feel out of your control. The central premise behind Medical Assistance in Dying is the ability to take back control of when and how you die.<\/p>\n\n\n\n<p>By definition, <a href=\"https:\/\/www.ottawahospital.on.ca\/en\/clinical-services\/deptpgrmcs\/departments\/medical-assistance-in-dying-maid\/\">Medical\nAssistance in Dying<\/a> (MAiD) is a procedure in which a patient is given\nmedications to intentionally and safely end their life. For people who have terminal\nillnesses from which they are going to die, MAiD is a way to maintain autonomy,\ndignity and control at the end of their life. <\/p>\n\n\n\n<p>\u201cJust the idea of somebody knowing when and how they are going to die is such a foreign concept to a lot of people,\u201d said Mike Kekewich, Director of Clinical and Organizational Ethics at The Ottawa Hospital, and part of the team responsible for developing the MAiD program at the hospital. \u201cIt was important for our program to be extremely compassionate and patient-focused.\u201d<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Medical Assistance in Dying legislation<\/h2>\n\n\n\n<p><a href=\"https:\/\/www.canada.ca\/en\/health-canada\/services\/medical-assistance-dying.html\">MAiD legislation<\/a> (<a href=\"https:\/\/www.documentcloud.org\/documents\/2803276-C-14-Medical-assistance-in-dying.html\">Bill C-14<\/a>) was passed by the Canadian government in June, 2016 after several years of analysis, debate and discussion. The Ottawa Hospital had been preparing for the legislation and had a program in place when Bill C-14 became law.<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p> \u201cThere are several areas of MAiD legislation that could be open to interpretation. This includes the definition of death being reasonably foreseeable. You could make a case that all of our deaths are reasonably foreseeable. That phrase needed to be made clear in this legislation.\u201d <\/p>\n<\/blockquote>\n\n\n\n<p>Compassion is one of The Ottawa Hospital\u2019s\ncore values, and it was central to the design of the Medical Assistance in\nDying program. Experts from a variety of areas were consulted such as\nclinicians, social work, ethics, and patient groups, in order to ensure that the\nprogram was comprehensive, and took into consideration all possible factors. <\/p>\n\n\n\n<p>\u201cWe wanted to be as patient-centred as\npossible,\u201d said Kekewich. \u201cThere were many important aspects of the program,\nsuch as the ability to provide MAiD in the patient\u2019s home, or in a long-term\ncare home, not just at the hospital. That was one of the first things we\nthought about when developing the program.\u201d <\/p>\n\n\n\n<p>That program, first developed for The Ottawa Hospital, became the standard for the region, and is now the&nbsp;<a rel=\"noreferrer noopener\" href=\"https:\/\/www.ottawahospital.on.ca\/en\/clinical-services\/deptpgrmcs\/departments\/medical-assistance-in-dying-maid\/\" target=\"_blank\">Champlain Regional Medical Assistance in Dying (MAiD) Network<\/a>,&nbsp;in collaboration with multiple organizations throughout the community.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"> Questions remain<\/h2>\n\n\n\n<p>While the law has been in place since 2016,\nmany questions remain about how the law should be applied.<\/p>\n\n\n\n<p>\u201cThere are several areas of MAiD\nlegislation that could be open to interpretation,\u201d said Dr. Viren Naik, Medical\nDirector of the Champlain Regional MAiD Network. \u201cThis includes the definition\nof death being reasonably foreseeable. You could make a case that all of our\ndeaths are reasonably foreseeable. That phrase needed to be made clear in this\nlegislation.\u201d<\/p>\n\n\n\n<p>The concept of \u201cnatural death being\nreasonably foreseeable\u201d for a patient to be eligible for MAiD is something that\nthe <a href=\"https:\/\/www.theglobeandmail.com\/life\/health-and-fitness\/article-quebec-court-strikes-down-parts-of-laws-on-medically-assisted-death\/\">Quebec\nSupreme Court struck down in late 2019<\/a>. This has sparked further review of\nthe legislation by the federal government. <\/p>\n\n\n\n<p>Now, the Canadian government <a href=\"https:\/\/www.theglobeandmail.com\/politics\/article-ottawa-launches-public-consultations-to-meet-court-deadline-to-loosen\/\">has\nlaunched public consultations on the rules for Medical Assistance in Dying<\/a>.\nAs the public continues to think about MAiD and its implications, and as the\nlegislation evolves, we take a look at what the process looks like now. <\/p>\n\n\n\n<p>Listen to the latest episode of On Call: The Ottawa Hospital Podcast to hear interviews from some of the key players who developed the Medical Assistance in Dying program at The Ottawa Hospital, now known as the Champlain Regional MAiD Network. <\/p>\n\n\n\n<h2 class=\"wp-block-heading\">What does MAiD involve?<\/h2>\n\n\n\n<p>This is a shortened version of the entire\nprocess. Visit our <a href=\"https:\/\/www.ottawahospital.on.ca\/en\/clinical-services\/deptpgrmcs\/departments\/medical-assistance-in-dying-maid\/information-for-patients-and-loved-ones\/\">MAiD\nwebpage<\/a> to learn more about the MAiD process. <\/p>\n\n\n\n<p>In order to receive Medical Assistance in\nDying, patients must submit a written request, which must be signed by two\npeople at the same time. One of the aspects of current MAiD legislation that is\nlikely to go under review is the requirement that witnesses can\u2019t be\nhealth-care professionals, or family or friends who may benefit (in a will for\nexample) from the patient\u2019s death. <\/p>\n\n\n\n<p>The patient will then be assessed for <a href=\"https:\/\/www.ottawahospital.on.ca\/en\/documents\/2019\/12\/maid-faqs-patients-and-loved-ones.pdf\/\">MAiD\neligibility criteria<\/a> by a doctor or nurse practitioner. The list of\ncriteria is extensive and involves assessments like whether the patient is\ncapable of making informed decisions, whether their death is reasonably foreseeable,\nand whether their illness is serious and incurable, among many others. <\/p>\n\n\n\n<p>After a minimum ten-day reflection period,\nthe procedure can be performed. <\/p>\n\n\n\n<h2 class=\"wp-block-heading\">The Ottawa Hospital MAiD team<\/h2>\n\n\n\n<p>Because Medical Assistance in Dying is a\ncomplex form of care, many different health professionals work together,\nincluding:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Nurses<\/li>\n\n\n\n<li>Physicians<\/li>\n\n\n\n<li>Nurse Practitioners <\/li>\n\n\n\n<li>Social Workers <\/li>\n\n\n\n<li>Speech Language Pathologists<\/li>\n\n\n\n<li>Other Allied Health staff <\/li>\n<\/ul>\n\n\n\n<p>The Ottawa Hospital took great care in assembling the MAiD team to ensure that staff had the right to choose whether or not they would participate.  \u201cWe took the position that staff were not going to be required to participate, but we wanted to give them an opportunity to be involved if they wanted,\u201d said Kekewich. \u201cThat led to the development of the dedicated MAiD team.\u201d <\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p>\u201cIt\u2019s both the most difficult thing I\u2019ve done as a physician, and also the most rewarding.\u201d<\/p>\n<\/blockquote>\n\n\n\n<h2 class=\"wp-block-heading\">The role of social work<\/h2>\n\n\n\n<p>MAiD involves more than the physical act of\nadministering the medication. There are complex patient and family needs to\nconsider, given the unique situation that many people seeking MAiD find\nthemselves in. This is why social workers play an important role before, during\nand after the delivery of MAiD. <\/p>\n\n\n\n<p>Social workers are there to ensure that the patients and their loved ones have all the support they need throughout the process and afterwards. This could be anything from arranging for the patient\u2019s favourite music to play during the procedure, to <a href=\"https:\/\/www.dcottawa.on.ca\/\">mental health<\/a> and <a href=\"https:\/\/www.ottawahospital.on.ca\/en\/documents\/2019\/12\/maid-grief-and-bereavement-resource.pdf\/\">bereavement<\/a> resources for family members after the patient has died.  \u201cFamilies often deal with what is called anticipatory grief,\u201d said Lauren Clark, Social Worker in the Champlain Regional MAiD Network. \u201cThis happens when the patient may seem well enough as they move through the process, and the family struggles to envision this date they have circled on the calendar where their loved one is going to die. We help them through that by making sure they have a good support network, as well as any additional resources they may need afterwards. We also ensure that the patient has everything they need on the day of.\u201d <\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Legislation under review<\/h2>\n\n\n\n<p>As the Canadian government launches public\nconsultations on the rules for MAiD, they are looking to focus on three key\nareas of the current law:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Cases where mental illness is\nthe reason for requesting MAiD. <\/li>\n\n\n\n<li>Cases where patients want to\nmake an advanced request for MAiD before they lose their ability to consent.<\/li>\n\n\n\n<li>Cases involving patients under\nthe age of 18. <\/li>\n<\/ul>\n\n\n\n<p>According to Dr. Naik, these are important\nareas that needed further consideration in the first iteration of legislation. <\/p>\n\n\n\n<p>\u201cCare providers have been looking at these\nsince the law was passed,\u201d he said. \u201cThese are very important areas \u2013 advanced\ndirectives, mature minors and mental illness \u2013 that need to be looked at\nfurther as the legislation evolves.\u201d <\/p>\n\n\n\n<p>It has been almost four years since MAiD\nbecame legal in Canada, so care providers, governments and the public have\nlearned a lot about how providing this care works in practice. As society\nevolves in education and requirements around a particular form of care, so does\nthe law dictating how it is performed. And MAiD is something that the public is\nbecoming more familiar with. <\/p>\n\n\n\n<p>According to Dr. Naik, MAiD accounts for one to two percent of all deaths in Canada. <\/p>\n\n\n\n<h2 class=\"wp-block-heading\">The MAiD experience<\/h2>\n\n\n\n<p>Social worker Lauren Clark says the experience\ncan be touching to witness.<\/p>\n\n\n\n<p>\u201cIt\u2019s surreally beautiful,\u201d said Clark. \u201cIt\u2019s\npeaceful. There is a lot of love in the room, and you feel that love. It can be\nquiet, or it can be loud. Sometimes it is one person in the room, sometimes it\nis 30. It is whatever the patient wants it to be. We make sure it\u2019s comfortable\nfor them, however we can. It\u2019s an opportunity for patients and families to say\ngoodbye, so we make it fit their needs.\u201d<\/p>\n\n\n\n<p>For Dr. Naik, it\u2019s an opportunity to help\nhis patients fulfill a wish, and that makes the experience one of the most\nrewarding in his career. <\/p>\n\n\n\n<p>\u201cIt\u2019s both the most difficult thing I\u2019ve\ndone as a physician, and also the most rewarding,\u201d he said. \u201cIt\u2019s difficult\nbecause you become invested in the patient, so it can be challenging to perform\nthe procedure. But you recognize that for some patients, this is a highly-desirable\nwish of theirs &#8211; the ability to maintain control, autonomy and dignity at the\nend of their life. You\u2019re helping them fulfill that wish, while also easing\ntheir pain and suffering.\u201d<\/p>\n\n\n\n<p>Often patients can feel a loss of control when diagnosed with a life-threatening, terminal or life-changing disease or illness. Medical Assistance in Dying puts the power back in the hands of the patient.<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p> \u201cMAiD respects the patient\u2019s individuality and autonomy. For our health-care system, this is the way of the future.\u201d  <\/p>\n<\/blockquote>\n\n\n\n<p>\u201cThere are very few opportunities in someone\u2019s life to have control, especially at times when everything else feels uncontrollable,\u201d said Clark. \u201cIn the past, the patient voice has often not been heard in health care. If we can provide MAiD to someone, and it can be on their terms, this is an opportunity for the patient\u2019s voice to be heard.\u201d<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Peace of mind<\/h2>\n\n\n\n<p>For many patients and their families,\ngetting approval for MAiD is not just about the act of undergoing the\nprocedure. It\u2019s about peace of mind in knowing they have control over how they\ndie, should they choose to exercise it. <\/p>\n\n\n\n<p>\u201cMany patients will receive approval for\nMAiD, and then not end up using it,\u201d said Dr. Naik. \u201cBut knowing they have the\nability to go through with the procedure, if they wanted to, can give them and\ntheir families peace of mind, knowing they are in control of one more aspect of\ntheir lives, when everything else seems out of control.\u201d<\/p>\n\n\n\n<p>A terminal illness can cause great stress and uncertainty for both patients and their loved ones. Part of what so many people find helpful in MAiD being legal in Canada is that patients can take comfort in knowing they have this option available to them, regardless of whether or not they choose to take that path. <\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Staff wellness<\/h2>\n\n\n\n<p>What about the staff who provide this form\nof care? For health-care providers, who may have chosen their career paths\nbecause they wanted to save lives, shifting focus to helping someone die could\nbe a very dramatic change in mindset. <\/p>\n\n\n\n<p>So, the hospital has made sure that staff\nand physicians who provide MAiD have access to mental health support. <a href=\"https:\/\/www.ottawahospital.on.ca\/en\/youre-in-my-care\/build-resiliency-hospital-experts-give-tips-on-managing-stress\/\">Mental\nresiliency<\/a> was a key component of the program. <\/p>\n\n\n\n<p>\u201cIn the beginning, we would host both pre- and post-procedure meetings with staff so that they could discuss their thoughts or feelings around what just happened,\u201d said Kekewich. \u201cThis normalized the process of open communication around how staff felt. Now, many of these conversations just happen naturally. We also make sure that mental health support is available to those who need it.\u201d <\/p>\n\n\n\n<h2 class=\"wp-block-heading\">What\u2019s next?<\/h2>\n\n\n\n<p>\u201cThe option for MAiD is new, but the desire\nto die is not new,\u201d said Dr. Naik. <\/p>\n\n\n\n<p>It\u2019s not clear how these public\nconsultations will affect legislation for Medical Assistance in Dying. However,\nhealth-care providers feel encouraged that issues they have raised are now\nbeing reviewed.<\/p>\n\n\n\n<p>\u201cMAiD respects the patient\u2019s individuality and autonomy,\u201d said Clark. \u201cFor our health-care system, this is the way of the future.\u201d<\/p>\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>As the government launches public consultations on Medical Assistance in Dying (MAiD), we take an in-depth look at what MAiD looks like for care providers at The Ottawa Hospital, and the questions that still remain.<\/p>\n","protected":false},"author":2,"featured_media":51277,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[9],"tags":[480,481],"class_list":["post-51275","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-healthy-tomorrows","tag-compassion","tag-medical-assistance-in-dying"],"acf":[],"wps_subtitle":"","_links":{"self":[{"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/posts\/51275","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/comments?post=51275"}],"version-history":[{"count":0,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/posts\/51275\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/media\/51277"}],"wp:attachment":[{"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/media?parent=51275"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/categories?post=51275"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/tags?post=51275"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}