{"id":36936,"date":"2018-04-25T13:49:28","date_gmt":"2018-04-25T17:49:28","guid":{"rendered":"http:\/\/www.ottawahospital.on.ca\/?p=36936"},"modified":"2021-03-12T09:53:11","modified_gmt":"2021-03-12T14:53:11","slug":"sailing-enthusiast-tests-patient-centred-approach-to-parkinsons-care","status":"publish","type":"post","link":"https:\/\/www.ottawahospital.on.ca\/en\/healthy-tomorrows\/sailing-enthusiast-tests-patient-centred-approach-to-parkinsons-care\/","title":{"rendered":"Sailing enthusiast tests patient-centred approach to Parkinson\u2019s care"},"content":{"rendered":"

Sailing enthusiast Peter Juryn joined a pilot study that put him in charge of managing his Parkinson\u2019s disease. An expert nurse helped him set his own care priorities and referred him to health-care professionals who specialize in his care needs.<\/em> <\/span><\/span><\/p>\n

\"Close-up<\/p>\n

Sailing is a life-long love affair for Peter Juryn that began when was nine years old. He now sails out of the Nepean Sailing Club, where he also helps out with the boats and hangs out with his friends.<\/p>\n

Unfortunately, the medication he takes for Parkinson\u2019s disease was keeping him awake for hours during the night, making it harder to do the things he loves.<\/p>\n

During an appointment, Dr. Tiago Mestre<\/a>\u00a0and nurse Diane C\u00f4t\u00e9 asked if he would like to take part in a study looking at a new way of delivering Parkinson\u2019s care.<\/p>\n

\u201cI said \u2018Sure, I\u2019ll help. What can I do?\u2019\u201d said Juryn. \u201cI\u2019d like to help the system work better. If it can help me as well, then that\u2019s great too.\u201d<\/p>\n

Juryn was paired with C\u00f4t\u00e9, a specialized Parkinson\u2019s nurse, who helped him identify his three care priorities: sleep, speech and exercise.<\/p>\n

\u201cI\u2019m more in the driver\u2019s seat,\u201d said Juryn, who has lived with Parkinson\u2019s disease since 2001. \u201cI\u2019m kind of building more of a team around me, based on these priorities.\u201d<\/p>\n

Juryn is currently treated with deep brain stimulation for his Parkinson\u2019s, which reduced his medication and improved his sleep. But simple tips like moving his desk and computer out of his bedroom also made a difference.<\/p>\n

\u201cI built a sleep sanctuary of sorts, free from all blue screens,\u201d said Juryn.<\/p>\n

\"Close-up<\/p>\n

C\u00f4t\u00e9 also lined up a referral to a sleep clinic and to a speech therapist, all without Juryn having to see a neurologist. Thanks to a care network created by the researchers, she was able to direct him to professionals with knowledge of Parkinson\u2019s disease. Peter has joined a specialized speech therapy program for people with Parkinson\u2019s, and his voice and swallowing have already improved. He also joined a gym where he exercises three to four times a week.<\/p>\n

\u201cThere\u2019s a lot of demand for Parkinson\u2019s neurologists, and patients often wait months between appointments,\u201d said C\u00f4t\u00e9. \u201cBy referring patients to specialized caregivers in the community, we can improve their quality of life with little cost to the system.\u201d<\/p>\n

Dr.\u00a0Mestre received a $197,000 New Investigator Award<\/a> to test this new model of care, called the Integrated Parkinson\u2019s Care Network, which was developed in collaboration with Dr.\u00a0David Grimes<\/a>. The pilot study at The Ottawa Hospital has recruited almost all the 100 patients it needs after only four months. If it is successful, the model may be introduced to other sites across Ontario and Canada.<\/p>\n

\u201cI\u2019m excited about this project because it has the potential to make a real difference for our patients, and the results are immediate,\u201d said Dr. Mestre, a Parkinson\u2019s neurologist at The Ottawa Hospital and an assistant professor at the University of Ottawa Brain and Mind Research Institute. \u201cWe believe that this patient-centred model can improve quality of life for the 100,000 Canadians living with Parkinson\u2019s disease.\u201d<\/p>\n

Juryn has been very satisfied with the care he\u2019s received.<\/p>\n

\u201cAll the staff are really helpful, and they obviously care,\u201d said Juryn.<\/p>\n

\u201cI am very proud of Peter for his accomplishments and the things he is doing to improve his quality of life since entering the study,\u201d said C\u00f4t\u00e9.<\/p>\n

This research is also\u00a0supported by generous donations<\/a> to The Ottawa Hospital and the\u00a0University of Ottawa Brain and Mind Research Institute.<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Sailing is a life-long love affair for Peter Juryn that began when was nine years old. Unfortunately, the medication he takes for Parkinson\u2019s disease was making it harder to do the things he loves.<\/p>\n","protected":false},"author":25,"featured_media":36937,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[9],"tags":[422,414,381,483],"class_list":["post-36936","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-healthy-tomorrows","tag-integrated-care","tag-parkinsons-disease","tag-patient-experience","tag-patients-as-partners"],"acf":[],"wps_subtitle":"","_links":{"self":[{"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/posts\/36936","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/comments?post=36936"}],"version-history":[{"count":0,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/posts\/36936\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/media\/36937"}],"wp:attachment":[{"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/media?parent=36936"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/categories?post=36936"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/tags?post=36936"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}