{"id":58069,"date":"2020-12-16T15:56:06","date_gmt":"2020-12-16T20:56:06","guid":{"rendered":"https:\/\/www.ottawahospital.on.ca\/?page_id=58069"},"modified":"2023-11-05T15:48:28","modified_gmt":"2023-11-05T20:48:28","slug":"epilepsy-resources-and-links","status":"publish","type":"page","link":"https:\/\/www.ottawahospital.on.ca\/en\/clinical-services\/deptpgrmcs\/programs\/epilepsy\/epilepsy-resources-and-links\/","title":{"rendered":"Epilepsy resources and links"},"content":{"rendered":"<h2><a name=\"_Toc53493795\"><\/a>Epilepsy information including epilepsy surgery<\/h2>\n<ul>\n<li><a href=\"https:\/\/www.epilepsyottawa.ca\/\" target=\"_blank\" rel=\"noopener noreferrer\">Epilepsy Ottawa<\/a> is one of the four main pillars of the Ottawa Epilepsy Program and includes its community program. Its website has a number of useful <a href=\"https:\/\/epilepsyottawa.ca\/resources\/\" target=\"_blank\" rel=\"noopener noreferrer\">resources<\/a>, including videos, information pamphlets, and spark sheets on diagnosis, treatment of seizures and epilepsy. It also has a listing of local resources and programs.<\/li>\n<li><a href=\"https:\/\/epilepsyontario.org\/advocacy\/anti-convulsant-drug-shortages\/\" target=\"_blank\" rel=\"noopener noreferrer\">Epilepsy Ontario<\/a> and <a href=\"https:\/\/www.drugshortagescanada.ca\/\" target=\"_blank\" rel=\"noopener noreferrer\">Drug Shortages Canada<\/a> each has a list of current anti-seizure drug shortages. Please consult the links below to see how this could affect you<\/li>\n<li><a href=\"https:\/\/canadianleagueagainstepilepsy.wildapricot.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">The Canadian League Against Epilepsy<\/a> has a good amount of information in the \u201cAbout Epilepsy\u201d drop-down menu.<\/li>\n<li><a href=\"https:\/\/epilepsyontario.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">Epilepsy Ontario<\/a> has many articles and <a href=\"https:\/\/epilepsyontario.org\/research-and-resources\/spark-sheets\/\" target=\"_blank\" rel=\"noopener noreferrer\">patient info sheets<\/a> written by epilepsy experts in Toronto, London and other parts of North America. Visit their dynamic <a href=\"https:\/\/www.youtube.com\/channel\/UCuQafFROE6kQWsuXwD60sFw\" target=\"_blank\" rel=\"noopener noreferrer\">YouTube channel<\/a> for very useful videos on how seizures can manifest.<\/li>\n<li><a href=\"https:\/\/globalgenes.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">org<\/a> has information on staying safe while living alone with epilepsy.<\/li>\n<\/ul>\n<h2><a name=\"_Toc53493796\"><\/a>Seizure first aid<\/h2>\n<ul>\n<li>Booklet from Epilepsy Ottawa<\/li>\n<li><a href=\"https:\/\/www.epilepsy.com\/sites\/core\/files\/atoms\/files\/SFA%20Flier_HQ_8.5x11_PDF.pdf\" target=\"_blank\" rel=\"noopener noreferrer\">Fact sheet from Epilepsy Foundation<\/a><\/li>\n<\/ul>\n<h2><a name=\"_Toc53493797\"><\/a>Women with epilepsy<\/h2>\n<ul>\n<li><a href=\"https:\/\/www.epilepsy.com\/living-epilepsy\/epilepsy-and\/women\" target=\"_blank\" rel=\"noopener noreferrer\">Women living with epilepsy: Epilepsy Foundation<\/a><\/li>\n<li><a href=\"https:\/\/epilepsyontario.org\/living-with-epilepsy\/women-and-epilepsy-2\/\" target=\"_blank\" rel=\"noopener noreferrer\">Women and epilepsy: Epilepsy Ontario<\/a><\/li>\n<li><a href=\"https:\/\/www.aedpregnancyregistry.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">The North American Antiepileptic Drug Pregnancy Registry<\/a><\/li>\n<li><a href=\"https:\/\/web.emmes.com\/study\/monead\/\" target=\"_blank\" rel=\"noopener noreferrer\">Maternal Outcomes and Neurodevelopmental Effects of Antiepileptic Drugs (MONEAD)<\/a><\/li>\n<\/ul>\n<h2><a name=\"_Toc53493798\"><\/a>Epilepsy and healthy living<\/h2>\n<ul>\n<li>Living with Epilepsy: Epilepsy Foundation<\/li>\n<\/ul>\n<h2><a name=\"_Toc53493799\"><\/a>Sudden Unexpected Death in EPilepsy (SUDEP)<\/h2>\n<ul>\n<li><a href=\"https:\/\/www.sudepaware.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">SUDEP<\/a> contains useful <a href=\"https:\/\/www.sudep.news\/about-sudep\" target=\"_blank\" rel=\"noopener noreferrer\">information<\/a> about this condition.<\/li>\n<\/ul>\n<h2><a name=\"_Toc53493800\"><\/a>Non-epileptic seizures<\/h2>\n<ul>\n<li><a href=\"https:\/\/www.nonepilepticseizures.com\/\" target=\"_blank\" rel=\"noopener noreferrer\">Psychogenic non-epileptic seizures (PNES)<\/a><\/li>\n<li><a href=\"https:\/\/www.nonepilepticattacks.info\" target=\"_blank\" rel=\"noopener noreferrer\">Non-epileptic attacks<\/a><\/li>\n<li><a href=\"https:\/\/www.amazon.ca\/Psychogenic-Non-epileptic-Seizures-Lorna-Myers\/dp\/1492881414\" target=\"_blank\" rel=\"noopener noreferrer\">Psychogenic Non-epileptic Seizures<\/a>: A Guide by Lorna Myers, PhD.<\/li>\n<li><a href=\"https:\/\/www.youtube.com\/watch?v=MA1EYAg9y5k&amp;feature=youtu.be\" target=\"_blank\" rel=\"noopener noreferrer\">dis-sociated<\/a>: an online feature documentary on dissociative seizures<\/li>\n<\/ul>\n<h2><a name=\"_Toc53493801\"><\/a>Epilepsy research at The Ottawa Hospital<\/h2>\n<p>The Ottawa Hospital is a leading academic health, research and learning hospital. Its clinicians are engaged in a number of research studies on multiple research topics including medical education, critical care electroencephalography, outcomes in the care of women with epilepsy, and transition of pediatric patients to the adult hospital, to name but a few.<\/p>\n<p>Please visit the Ottawa Hospital Research Institute (OHRI) for more information on current epilepsy research being done in our hospital.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Epilepsy information including epilepsy surgery Epilepsy Ottawa is one of the four main pillars of the Ottawa Epilepsy Program and includes its community program. Its website has a number of useful resources, including videos, information pamphlets, and spark sheets on diagnosis, treatment of seizures and epilepsy. It also has a listing of local resources and [&hellip;]<\/p>\n","protected":false},"author":25,"featured_media":0,"parent":57825,"menu_order":10,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_mc_calendar":[],"footnotes":""},"class_list":["post-58069","page","type-page","status-publish","hentry"],"acf":[],"wps_subtitle":"","_links":{"self":[{"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/pages\/58069","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/users\/25"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/comments?post=58069"}],"version-history":[{"count":0,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/pages\/58069\/revisions"}],"up":[{"embeddable":true,"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/pages\/57825"}],"wp:attachment":[{"href":"https:\/\/www.ottawahospital.on.ca\/en\/wp-json\/wp\/v2\/media?parent=58069"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}